Exercise Capacity and Idebenone Intervention in Children and Adolescents With Friedreich Ataxia

Interesting, and yet not surprising reading.

http://www.archives-pmr.org/article/PIIS0003999310002352/abstract?rss=yes#back-cor1

test

just a little test for some technical glitches

What is Gene Therapy and why is it so fascinating and promising? Report kindly prepared by Dr. Michele Lufino for BabelFAmily.

thanks to Gian at BabelFAmily, for sending this through.

http://www.babelfamily.org/en/latestataxianews/756-what-is-gene-therapy-and-why-is-it-so-fascinating-and-promising

Longitudinal tracking of gait and balance impairments in cerebellar disease

http://www3.interscience.wiley.com/journal/123513804/abstract?CRETRY=1&SRETRY=0

Stem Cell Guide

http://www.closerlookatstemcells.org//AM/Template.cfm?Section=Home

Santhera's MICONOS Trial with Catena®/Sovrima® in Friedreich's Ataxia Misses Primary Endpoint

There have been some articles around about these findings.... some with
quite a negative view.... the point to remember, is that not all the
testing is done, and the cardiac side of things is still ongoing.
>From a personal viewpoint, I have never expected Idebenone to change the
ICARS or FARS scores.... for our family it was always about the cardio,
and we have personal cause to be optimistic.
http://www.santhera.com/index.php?docid=212&vid=&lang=en&newsdate=201005&newsid=1417424&newslang=en

Immune system helps transplanted stem cells navigate in central nervous system

http://www.sciencedaily.com/releases/2010/06/100601162300.htm?sms_ss=email

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Variations of frataxin protein levels in normal individuals.

http://www.ncbi.nlm.nih.gov/pubmed/20506029