Help FA in SA

Saturday, February 27, 2010

FDA Expands Commitment to Patients with Rare Diseases

http://www.fda.gov/Drugs/NewsEvents/ucm201994.htm

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Drug delivery breakthrough targets organelles

http://www.nanowerk.com/news/newsid=15042.php

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Friday, February 26, 2010

Another loss

It is with sadness that I report the passing of Gustav Viktor Angantyr
04/11/1994 - 02/25/2010 in Sweden. Gustav went into Hospital for
Scoliosis Surgery, and suffered heart complications. Our Warmest
thoughts and wishes extend to his family and the rest of the world wide
FA community.

Tuesday, February 23, 2010

iPS cells related article - NIH grant funds study on stem cells from ALS patients.

Therapeutic Cells Derived From Reprogrammed (iPS) Stem Cells Display Early Aging

social worker/project officer

http://mycareer.com.au/consumer/find/job/view.aspx?s_rid=recommendation-jobs&s=705&jobid=7371600

Social Worker/ Project Officer
Murdoch Childrens Research Institute, located at the Royal Children's
Hospital is Australia's largest child health research Institute. Our
team of 1,000 researchers is driven by the excitement of discovery and
the ambition to make a real difference to the health and well being of
children. Our world class laboratory, clinical and public health
research helps to prevent and treat conditions including allergies,
asthma, brain injury, cancer, cerebral palsy, depression, genetic
conditions, obesity, premature birth and infectious diseases.

Part-time (2 days per month)
* Flexible working hours
* Part of dynamic, multi-disciplinary team
*
The Friedreich Ataxia Clinic is a vibrant, unique multidisciplinary
clinic that provides medical and allied health ambulatory care
intervention to approximately 130 national and international children
and adults with Friedreich ataxia annually.

The successful applicant to this position will provide social work
services to the children and adults who attend the clinic. This position
is for two days per month. A proportion of these clinical hours will
comprise attendance at the Freidreich Ataxia Clinic at Monash Medical
Centre on the fourth Tuesday of the month and the remainder will involve
follow up that may be completed at a home office if desired.
Undertaking home visits to clients may be required on occasions.

A competitive remuneration package will be offered to the successful
applicants who will also be able to access the Institute's generous
salary packaging arrangements.

Applications for this Social Worker/ Project Officer position, Reference
Number MC2175 close Friday 5th March 2010.