to announce the launch of Help FA in SA webpage.
http://www.fainsa.org
The site is aimed at those interested in Friedreich Ataxia, or looking
for further resources, for information regarding current scientific
research, or those looking for an interesting event which helps to find
a cure for this crippling disease.
Help FA in SA was started by Laurel and Wes Hosking, whose 9 year old
son was diagnosed with Friedreich Ataxia in 2007. Laurel and Wes
stuggled for years to get answers to their sons poor co-ordination and
clumsiness, only to be told " he is just one of those kids". It was
only through their persistence and stubbornness that they finally got
the answer.
Help FA in SA primary focus is to raise awareness of FA in South
Australia, and to raise funds for FARA(A)- Friedreich Ataxia Research
Association (Australasia). FARA(A) is a Registered Charity, which can
boast 100% of funds raised actually goes into research to find a cure.
FARA(A) can also boast the instigation for the first clinic world wide,
solely dedicated to FA. The clinic is so successful, they are now
looking to expand and open another.
Since forming Help FA in SA, Laurel and Wes, through the generous help
and support of friends, have raised over $35000. Every penny going to
exciting and promising research.
Why is science working around the world to find a cure? Because they
believe they can a " win " this one.!
For further information, please contact
Laurel Hosking
laurel@fainsa.org
A toast!.. here is to finding the cure in 2010!
--
Laurel Hosking
Help FA in SA
mob: 04204 98963
ph: 08 64301857
fax: 08 85221313
laurel@fainsa.org
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